Books

Licensed psychologist and director of New York’s Center for Coping, Dr. Robert Phillips answers a variety of questions on lupus in the revised edition of his highly respected guide to living your...

Licensed psychologist and director of New York’s Center for Coping, Dr. Robert Phillips answers a variety of questions on lupus in the revised edition of his highly respected guide to living your best life with lupus.  Dr. Phillips largely focuses on providing strategies for coping with the challenges often experienced by those living with lupus – approaching such topics as emotions, relationships, and lifestyle changes with empathy and encouragement. This book also provides much...

Author Daniel J. Wallace, M.D., is one of the world's leading authorities on lupus, a disease of the immune system which can be deadly. In the fifth edition of his popular book, Wallace...

Author Daniel J. Wallace, M.D., is one of the world's leading authorities on lupus, a disease of the immune system which can be deadly. In the fifth edition of his popular book, Wallace provides new information about the pathology of the disease and about its treatments, including the new biologic drug for lupus, belimumab (Benlysta). Readers will also discover fully updated sections on the science of lupus and current research trends and directions, as well as on the impact of lifestyle...

Lupus Q&A: Everything You Need to Know Revised and Updated, 3rd edition by Robert G. Lahita, M.D. and Robert H. Phillips, Ph.D. (Avery Books December 2014). This book is appropriate for anyone...

Lupus Q&A: Everything You Need to Know Revised and Updated, 3rd edition by Robert G. Lahita, M.D. and Robert H. Phillips, Ph.D. (Avery Books December 2014). This book is appropriate for anyone interested in learning more about this complex disease. Co-authors Lahita and Phillips use plain language and a Q&A format to discuss everything from how the disease affects the body to current treatments and ways to cope with the psychological effects of chronic illness. This book holds the Foundation’s...

This booklet, produced by the LFA in conjunction with bone health experts from Vanderbillt University, University of Alabama, and University of Connecticut Health Center, describes osteoporosis and...

This booklet, produced by the LFA in conjunction with bone health experts from Vanderbillt University, University of Alabama, and University of Connecticut Health Center, describes osteoporosis and the special risks of bone density loss caused by lupus itself and by the glucocorticoids commonly taken for the inflammation associated with lupus. Sections include how OP affects the body, what you can do to help prevent OP, medications, and tips on how to “fall-proof” your home. The booklet...

The second edition of this popular book includes a new introduction, a list of Web sites, and the inclusion of arthritis in the list of illnesses that is representative of “invisible chronic...

The second edition of this popular book includes a new introduction, a list of Web sites, and the inclusion of arthritis in the list of illnesses that is representative of “invisible chronic illness.” The authors direct their book to healthcare providers, families, and patients dealing with invisible chronic illness (ICI) –those conditions that are chronic and disabling but not readily apparent to the casual observer. In Part 1, the authors define ICI, including brief descriptions of...

This book was written by a mother with lupus for other parents who are trying to cope with raising children and living with a chronic and often debilitating illness. Chapter topics on communication,...

This book was written by a mother with lupus for other parents who are trying to cope with raising children and living with a chronic and often debilitating illness. Chapter topics on communication, anger, guilt, and good vibes include information on dealing with preschoolers, elementary school-age children, and adolescents. The author, Barbara Butler, is one of the founding members of the Lupus Foundation of America and started the LFA, Missouri Chapter. Her three grown children provide the...

This book was conceived, created, and written by Scott and his third-grade class, with help from their teacher. The text and pictures explains what it’s like to live with lupus. The story is told in...

This book was conceived, created, and written by Scott and his third-grade class, with help from their teacher. The text and pictures explains what it’s like to live with lupus. The story is told in Scott’s voice, for children reading the book, and in the voice of Loopy Lupus, for parents, teachers, and caregivers. Charmingly illustrated by Scott’s big sister, the book uses the Loopy Lupus bug character to explain the technical side of lupus, while home photos of Scott and his family...

Pediatric rheumatologist Ana Quintero del Rio discusses at length how lupus is detected, its many symptoms and complications, the most successful and current treatments available, and ongoing...

Pediatric rheumatologist Ana Quintero del Rio discusses at length how lupus is detected, its many symptoms and complications, the most successful and current treatments available, and ongoing research. Her use of personal stories throughout lend a warm touch and illustrate how people with lupus are crafting solutions to the many challenges of living with this complex and unpredictable disease. The Patient Resources chapter includes information on finding the proper physicians,...

The author offers inspiration and practical living strategies for coping with chronic illness based on her personal experiences with lupus. Chapter topics include understanding your diagnosis, the...

The author offers inspiration and practical living strategies for coping with chronic illness based on her personal experiences with lupus. Chapter topics include understanding your diagnosis, the grieving process, how to explain your illness to others, talking to your children about your illness, your health care team, depression, the caregiver’s role, sex and intimacy, and a glossary of terms. This book is a long-time favorite book to of people with lupus or to give as a gift to a loved one...

This book captures the concerns, hopes, and emotions of 17 young people who are bravely meeting the challenges of living with chronic diseases. Whether living with lupus, juvenile-onset diabetes,...

This book captures the concerns, hopes, and emotions of 17 young people who are bravely meeting the challenges of living with chronic diseases. Whether living with lupus, juvenile-onset diabetes, Crohn’s disease, multiple sclerosis, or juvenile rheumatoid arthritis, they have one thing in common: they refuse to allow their disease to define them. Chapter topics include: Being Different; Independence Delayed; Talking to Your Doctor; Ways We Cope; and Words of Advice: Teen to Teen.

In this comprehensive resource guide for parents and professionals, the author offers easy-to-understand information on the causes, symptoms, tests and treatments for a variety of rheumatic diseases...

In this comprehensive resource guide for parents and professionals, the author offers easy-to-understand information on the causes, symptoms, tests and treatments for a variety of rheumatic diseases and childhood pain. Chapter topics include figuring out what is wrong, common causes of pain, the rheumatic diseases and related conditions, and living with a child who has a chronic condition. Written by renowned pediatric rheumatologist and lupus specialist Thomas J.A. Lehman,...